Local Meet-up – Brisbane
TOFS Member Bryony is organising a meet-up in Brisbane, Australia. This is a great opportunity to meet up with other OA/TOF parents and families in Queensland. When:10am-2pm Sunday, 3rd November […]
22 events found.
Events
South Bank Little Stanley St, Brisbane, AustraliaVirtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
Run Alton Towers
Alton Towers Farley Lane, Alton, Staffordshire, United KingdomRun for TOFS at the UK’s biggest Theme Park, Alton Towers, on Saturday 16th and Sunday 17th November 2024 for the 5k, 10k & Half Marathon event around the park. […]
TOFS Seminar 2024
EngineRooms Birchwood Park, Warrington, Cheshire, United KingdomClick here to see the full Seminar schedule and to meet the speakers.Join us in Warrington to hear from some leading experts and specialists from a variety of healthcare professions, […]
Local Meet-up: London
Ronald McDonald House Evelina London 216 Lambeth Road, London, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in London.Laura Bell, TOFS Local Contact (TLC) for Kent and Sussex, and Carrie Semark, TOFS volunteer have […]
Local Meet-up: Liverpool
Bowring Park Golf Club Roby Road, Huyton, Liverpool, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in Liverpool and from across Merseyside..Alan & Carolyn, TOFS Local Contacts (TLC) for Liverpool, are organising an […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
Local Meet-up: Essex
Mace Playce - Soft Play Centre Unit 3, Cuton Hall Lane, Chelmsford, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in Chelmsford and from across Essex.Anna Hallett, TOFS Local Contact (TLC) for Essex, is organising an informal […]
Live Q&A: Long term OA/TOF related gastro issues
OnlineAre you an adult born with OA/TOF experiencing gastro related issues then please join us for our next live Q&A webinar with Professor Nick Maynard. Professor Maynard is a leading […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
Starting Nursery, Pre-school, and School – Talk with TLCs
OnlineDo you have a child born with OA/TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents and share experiences. The session will […]
OA/TOF Awareness Week 2025
Various locationsJoin us for our 2025 Awareness Week and help us raise awareness of OA/TOF with health professionals and the wider public.Click here to find out more and get involved.
Rare Disease Day 2025
Various locationsRaising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Keep reading to see how you can get involved. How […]
TOFS Seminar 2025
St Michaels Centre, The Green, Stoke Gifford, Bristol, United KingdomQuick links:Book your ticketFull scheduleSpeaker biographiesJoin us in Bristol to hear from some leading experts and specialists from a variety of healthcare professions, who work with OA/TOF patients. It is […]
ERNICA: A traumatic Diagnosis – the (early) parent-child interaction in (rare) chronic paediatric diseases
OnlineERNICA – the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies have an upcoming webinar which may be useful for TOFS members. Title: A traumatic Diagnosis […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Live Q&A: Managing medications effectively
OnlineDo you have any questions or concerns around the medications you or your child may take? Join Consultant Pharmacist Gastroenterologist Anja St Clair Jones, and Lead Neonatal Pharmacist Christian Chadwick, […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Talk with TLCs: Top tips for travelling with your child born with OA/TOF
OnlineAre you planning on taking your child born with OA/TOF away on holiday? Whether going away in the UK or abroad, as parents, our TLCs Naomi and To’neill understand the […]
TOFS Annual General Meeting
OnlineMembers and Associates are invited to join us for the Annual General Meeting of T.O.F.S.The T.O.F.S. Annual General Meeting will take place on the 24th April, 2025 by Zoom at […]
