OA/TOF Awareness Week 2025
Join us for our 2025 Awareness Week and help us raise awareness of OA/TOF with health professionals and the wider public.Click here to find out more and get involved.
52 events found.
Events
Various locations
TOFS Seminar 2025
St Michaels Centre, The Green, Stoke Gifford, Bristol, United KingdomQuick links:Book your ticketFull scheduleSpeaker biographiesJoin us in Bristol to hear from some leading experts and specialists from a variety of healthcare professions, who work with OA/TOF patients. It is […]
ERNICA: A traumatic Diagnosis – the (early) parent-child interaction in (rare) chronic paediatric diseases
OnlineERNICA – the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies have an upcoming webinar which may be useful for TOFS members. Title: A traumatic Diagnosis […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Live Q&A: Managing medications effectively
OnlineDo you have any questions or concerns around the medications you or your child may take? Join Consultant Pharmacist Gastroenterologist Anja St Clair Jones, and Lead Neonatal Pharmacist Christian Chadwick, […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Talk with TLCs: Top tips for travelling with your child born with OA/TOF
OnlineAre you planning on taking your child born with OA/TOF away on holiday? Whether going away in the UK or abroad, as parents, our TLCs Naomi and To’neill understand the […]
TOFS Annual General Meeting
OnlineMembers and Associates are invited to join us for the Annual General Meeting of T.O.F.S.The T.O.F.S. Annual General Meeting will take place on the 24th April, 2025 by Zoom at […]
London Marathon 2025
London London, United KingdomRun the London Marathon for TOFS! Latest news & updates TOFS London Marathon team We have now closed our application process for the 2025 London Marathon due to unprecedented interest, […]
InoEA 25
Renaissance Polat İstanbul Hotel Sahilyolu Cad.No:2 Yesilyurt, Istanbul, TurkeyThe joint meeting of INoEA, PAAFIS and Aerodigestive Society will be held in Istanbul Turkey from April 30th to May 3rd, 2025.The meeting will be hosted by Turkish Association of […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Teddy Toddle 2025
Various locationsThe Teddy Toddle is back and you can double your donation for free!Toddle for the mental health of TOFS!The exciting fundraising event that challenges you to walk, run or even […]
Peak District Ultra Challenge
Bakewell Bakewell Showground, United KingdomTake on the Peak District Ultra Challenge for TOFS!Join Team TOFS to walk, jog, or run in the heart of the beautiful Peak District National Park.Whether you’re up for the 100km, […]
VACTERL Association Support Group Get-Together 2025
The Great Barr Hotel Newton Road Great Barr, BirminghamThis event is promoted on behalf of the VACTERL Association Support Group.The VACTERL Association Support Group aims to connect families and those affected by VACTERL Association, from across the UK. […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Local Meet-up: Cardiff
Ronald McDonald House Cardiff Heath Park Way, Cardiff, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in South Wales.Naomi Webborn, TOFS Local Contact (TLC) for South Wales has organised an informal get-together in […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
Local Meet-up: Birmingham
Ronald McDonald House Birmingham St Mary’s Row, Birmingham, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in Birmingham, for a cuppa and chat.Emma Connor, TOFS Local Contact (TLC) for Birmingham has organised an […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Great North Run 2025
Newcastle , United KingdomWe have now closed our application process for the 2025 Great North Run but please check out our other marathons and events. Related updates Run for TOFS in the 2025 […]
OA/TOF: A father’s perspective
OnlineAre you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Live Q&A: OA/TOF related respiratory issues for adults
OnlineAre you an adult born with OA/TOF and experiencing respiratory issues, such as chronic cough, aspiration, dysmotility or tracheomalacia? Join us for the upcoming Q&A session with Professor Alyn Morice. Professor […]
Royal Parks Half Marathon
Hyde Park London, United KingdomRun for TOFS in the 2025 Royal Park Half Marathon and help to make a difference in the lives of those born unable to swallow. Apply soon. Places going fast! SOLD OUT: […]
Myles Clabby Memorial Cup
St. Roch's F.C 713 Royston Rd, Glasgow, United KingdomTOFS Member, Danielle Clabby has organised the 3rd annual Myles Clabby Memorial Cup in October to celebrate the memory of baby Myles.Danielle says, "We want to see as many people […]
Parent & Carer virtual meet-up
OnlineAre you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the […]
Big Splash Swimathon 2025
Various locationsTake part in our Big Splash Swimathon and help support TOFS while staying active! Choose to go it alone or get the whole family involved and set a group target. […]
ERS: Panel discussion on lifelong respiratory care in OA/TOF & CDH
OnlineThe European Respiratory Society (ERS) is holding a webinar which may be of interest to medical professionals with an interest in OA/TOF.The event is co-chaired by Dr Caroline Love, Chair […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Parent & Carer virtual meet-up
OnlineAre you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the […]
Run Alton Towers 5k/10k/Half Marathon
Alton Towers Farley Lane, Alton, Staffordshire, United KingdomRun for TOFS at the UK’s biggest Theme Park, Alton Towers, on the 15th &16th November for the Alton Towers 5k, 10k & half marathon events around the park. Starting […]
Local Meet-up: Birmingham
Ronald McDonald House Birmingham St Mary’s Row, Birmingham, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in the West Midlands, for a cuppa, chat and some Christmas crafts. Emma Connor, TOFS Local Contact […]
Local Meet-up: Merseyside/Wirral
Moreton Presbyterian Church 174a Hoylake Road, Moreton, Wirral, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families from across Merseyside and the Wirral.Alan & Carolyn, TOFS Local Contacts (TLC) for Liverpool, are organising an […]
Virtual meet-up for adults born with OA/TOF [New Date]
OnlineIMPORTANT UPDATE:This event was originally scheduled to take place on the 4th December.Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Parent & Carer virtual meet-up
OnlineAre you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the […]
London Winter Walk
London London, United KingdomStart New Year on the right foot!A great event to wrap up and walk off the Christmas & New Year celebrations; maybe kick start a new fitness regime - and […]
Local Meet-up: Bristol
Ronald McDonald House Bristol Royal Fort Rd, Bristol, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families from across Bristol and surrounding areas.Sarah, TOFS Local Contact (TLC) for the South West of England, is […]
Local Meet up: Essex
Mace Playce - Soft Play Centre Unit 3, Cuton Hall Lane, Chelmsford, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families from across Essex and the South East. Anna, TOFS Local Contact (TLC) for Essex, is organising an […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
OA/TOF Awareness Week 2026
Various locationsSave the date From the 23rd February until the 1st March we are asking all members to help us raise awareness of Oesophageal Atresia and Tracheo-Oesophageal Fistula (OA/TOF) .To find […]
OA/TOF: A father’s perspective
OnlineAre you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having […]
Rare Disease Day 2026
Various locations28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. How to get involved Light […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
TOFS 2026 Seminar
FeaturedUCL Great Ormond Street Institute of Child Health 30 Guilford Street, London, United KingdomTOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from, please walk from […]
Parent & Carer virtual meet-up
OnlineAre you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the […]
Local Meet-up: Birmingham
Ronald McDonald House Birmingham St Mary’s Row, Birmingham, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in the West Midlands, for a cuppa, chat and some Easter crafts! Emma, TOFS Local Contact (TLC) […]
London Landmarks Half Marathon
London London, United KingdomSOLD OUT: Please note: This event is now full but you can still sign-up to to waitlist. The London Landmarks Half Marathon is a closed road, central London run and […]
Brighton Marathon 2026
Brighton Brighton, United KingdomThis event has now sold out. Please see our other challenge events if you would like to fundraise for TOFS. Run for TOFS and experience the buzz of the UK’s […]
Meet-up for adults born with OA/TOF (virtual)
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
