OA/TOF Awareness Week 2025
Join us for our 2025 Awareness Week and help us raise awareness of OA/TOF with health professionals and the wider public.Click here to find out more and get involved.
Join us for our 2025 Awareness Week and help us raise awareness of OA/TOF with health professionals and the wider public.Click here to find out more and get involved.
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Keep reading to see how
Quick links:Book your ticketFull scheduleSpeaker biographiesJoin us in Bristol to hear from some leading experts and specialists from a variety of healthcare professions, who work with OA/TOF patients. It is also a great chance to chat with other members; meet the TOFS volunteers and staff team and meet other charities/associations representing other medical anomalies. All […]
ERNICA – the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies have an upcoming webinar which may be useful for TOFS members. Title: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases When: Wednesday 5 March at 3pm (UK) / 4pm (CET) Book: https://events.teams.microsoft.com/event/08ac7def-4022-4d2e-a5c7-7e08feadf9e4@526638ba-6af3-4b0f-a532-a1a511f4ac80 About the webinar: […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Do you have any questions or concerns around the medications you or your child may take? Join Consultant Pharmacist Gastroenterologist Anja St Clair Jones, and Lead Neonatal Pharmacist Christian Chadwick, for this live Q&A session. All adults and parents welcome! Meet the speakersChristian ChadwickChristian is the Lead Pharmacist for Neonatal Care at the Royal Sussex […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
