About TOF/OA

Important information for new parents: 

No doubt learning that your baby has been born with his or her oesophagus not properly developed will have caused you a huge amount of worry and concern. What will it mean for your baby’s future and how will you cope?  Please be assured that our TOFS charity, which is run by people who are all parents or grandparents of TOF children or were themselves born with TOF, was established to provide practical and emotional support to all who are affected by the TOF condition.

On this website you will find lots of information which will help you to understand the medical issues. Please don’t try to read everything all at once, much better to take it one step at a time

 

The TOFS Charity administers a highly successful Facebook group where you can contact other parents in the same situation as yourself, share your concerns and benefit from their advice. When you ask to join the group you must answer some simple questions. They are there to help to ensure that only people with a genuine interest in TOF/OA can become members.

JOIN OUR FACEBOOK GROUP

 

When you become a member of the TOFS Charity you will gain access to more information and support. Membership is free. 

JOIN OUR TOFS FAMILY 

 

TOF has published a comprehensive book “THE TOF BOOK” which contains contributions from some of the leading experts on all aspect of TOF/OA and other related issues, as well stories and advice from the parents of TOF children.

BUY THE TOF BOOK

 

 

SOME BASIC INFORMATION ABOUT TOF/OA

Tracheo-Oesophageal Fistula (TOF) and Oesophageal Atresia (OA) are rare congenital conditions of the oesophagus (food pipe) and/or trachea (airway) that affect one in every 3,500 babies. Babies born with TOF/OA need to have intensive neo-natal care prior to corrective surgery, normally within days of birth.
Some children have to undergo additional surgical interventions later on in their lives. Whilst many children born with TOF/OA will experience only a few problems, others may have difficulties with swallowing and digesting food, Gastro-Oesophageal Reflux (where the acidic stomach contents pass back into the lower oesophagus) and respiratory problems. The effects of surgery and associated health problems can add a great deal to the usual challenges of parenthood.

 

© Tracheo-Oesophageal Fistula Support
TOFS is a registered charity, no. 327735 and a limited company, no. 2202260
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