Virtual meet-up for adults born with OA/TOF
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
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OnlineVirtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
Live Q&A: Long term OA/TOF related gastro issues
OnlineAre you an adult born with OA/TOF experiencing gastro related issues then please join us for our next live Q&A webinar with Professor Nick Maynard. Professor Maynard is a leading […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
Starting Nursery, Pre-school, and School – Talk with TLCs
OnlineDo you have a child born with OA/TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents and share experiences. The session will […]
TOFS Seminar 2025
St Michaels Centre, The Green, Stoke Gifford, Bristol, United KingdomQuick links:Book your ticketFull scheduleSpeaker biographiesJoin us in Bristol to hear from some leading experts and specialists from a variety of healthcare professions, who work with OA/TOF patients. It is […]
ERNICA: A traumatic Diagnosis – the (early) parent-child interaction in (rare) chronic paediatric diseases
OnlineERNICA – the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies have an upcoming webinar which may be useful for TOFS members. Title: A traumatic Diagnosis […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Live Q&A: Managing medications effectively
OnlineDo you have any questions or concerns around the medications you or your child may take? Join Consultant Pharmacist Gastroenterologist Anja St Clair Jones, and Lead Neonatal Pharmacist Christian Chadwick, […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Talk with TLCs: Top tips for travelling with your child born with OA/TOF
OnlineAre you planning on taking your child born with OA/TOF away on holiday? Whether going away in the UK or abroad, as parents, our TLCs Naomi and To’neill understand the […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
VACTERL Association Support Group Get-Together 2025
The Great Barr Hotel Newton Road Great Barr, BirminghamThis event is promoted on behalf of the VACTERL Association Support Group.The VACTERL Association Support Group aims to connect families and those affected by VACTERL Association, from across the UK. […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Local Meet-up: Birmingham
Ronald McDonald House Birmingham St Mary’s Row, Birmingham, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in Birmingham, for a cuppa and chat.Emma Connor, TOFS Local Contact (TLC) for Birmingham has organised an […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
OA/TOF: A father’s perspective
OnlineAre you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Live Q&A: OA/TOF related respiratory issues for adults
OnlineAre you an adult born with OA/TOF and experiencing respiratory issues, such as chronic cough, aspiration, dysmotility or tracheomalacia? Join us for the upcoming Q&A session with Professor Alyn Morice. Professor […]
