OA/TOF Awareness Week 2025
Join us for our 2025 Awareness Week and help us raise awareness of OA/TOF with health professionals and the wider public.Click here to find out more and get involved.
55 events found.
Events
Various locations
Rare Disease Day 2025
Various locationsRaising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Keep reading to see how you can get involved. How to get involved Light up for Rare At 7pm on the 28th Feb, show your colours and join the global chain of lights! Play this […]
TOFS Seminar 2025
St Michaels Centre, The Green, Stoke Gifford, Bristol, United KingdomQuick links:Book your ticketFull scheduleSpeaker biographiesJoin us in Bristol to hear from some leading experts and specialists from a variety of healthcare professions, who work with OA/TOF patients. It is also a great chance to chat with other members; meet the TOFS volunteers and staff team and meet other charities/associations representing other medical anomalies. All […]
ERNICA: A traumatic Diagnosis – the (early) parent-child interaction in (rare) chronic paediatric diseases
OnlineERNICA – the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies have an upcoming webinar which may be useful for TOFS members. Title: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases When: Wednesday 5 March at 3pm (UK) / 4pm (CET) Book: https://events.teams.microsoft.com/event/08ac7def-4022-4d2e-a5c7-7e08feadf9e4@526638ba-6af3-4b0f-a532-a1a511f4ac80 About the webinar: […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Live Q&A: Managing medications effectively
OnlineDo you have any questions or concerns around the medications you or your child may take? Join Consultant Pharmacist Gastroenterologist Anja St Clair Jones, and Lead Neonatal Pharmacist Christian Chadwick, for this live Q&A session. All adults and parents welcome! Meet the speakersChristian ChadwickChristian is the Lead Pharmacist for Neonatal Care at the Royal Sussex […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Talk with TLCs: Top tips for travelling with your child born with OA/TOF
OnlineAre you planning on taking your child born with OA/TOF away on holiday? Whether going away in the UK or abroad, as parents, our TLCs Naomi and To’neill understand the worry of what to pack, managing medications/equipment, and what food will be available… So, join them in sharing their top tips when travelling! CLICK HERE […]
TOFS Annual General Meeting
OnlineMembers and Associates are invited to join us for the Annual General Meeting of T.O.F.S.The T.O.F.S. Annual General Meeting will take place on the 24th April, 2025 by Zoom at 7:00 pm. Invited to attend: Council of Management, TOFS office staff, all Members and Associates Click here to register AGENDA1. Welcome and confirmation of quorum 2. Introduction3. […]
London Marathon 2025
London London, United KingdomRun the London Marathon for TOFS! Latest news & updates TOFS London Marathon team We have now closed our application process for the 2025 London Marathon due to unprecedented interest, but please check out our other marathons and events. Entry fee: £50 This fee goes towards the admin fees charged by the race organisers but […]
InoEA 25
Renaissance Polat İstanbul Hotel Sahilyolu Cad.No:2 Yesilyurt, Istanbul, TurkeyThe joint meeting of INoEA, PAAFIS and Aerodigestive Society will be held in Istanbul Turkey from April 30th to May 3rd, 2025.The meeting will be hosted by Turkish Association of Pediatric Surgeons (TAPS).Professionals working in the field of oesophageal atresia from around the world have been gathering at the INoEA conferences for more than a […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Teddy Toddle 2025
Various locationsThe Teddy Toddle is back and you can double your donation for free!Toddle for the mental health of TOFS!The exciting fundraising event that challenges you to walk, run or even skip 5K for TOFS.The big change this year is that we will be holding the event as part of our Big Give campaign. This means […]
Peak District Ultra Challenge
Bakewell Bakewell Showground, United KingdomTake on the Peak District Ultra Challenge for TOFS!Join Team TOFS to walk, jog, or run in the heart of the beautiful Peak District National Park.Whether you’re up for the 100km, the 50km, the 25km or prefer the shorter 10mile option, there’s something for everyone, and every route includes breath-taking views, including a pass by the […]
VACTERL Association Support Group Get-Together 2025
The Great Barr Hotel Newton Road Great Barr, BirminghamThis event is promoted on behalf of the VACTERL Association Support Group.The VACTERL Association Support Group aims to connect families and those affected by VACTERL Association, from across the UK. It's a chance to learn new things and share experiences with people, that are beginning or continuing their journey with VACTERL.The VACTERL Association Support Group […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Local Meet-up: Cardiff
Ronald McDonald House Cardiff Heath Park Way, Cardiff, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in South Wales.Naomi Webborn, TOFS Local Contact (TLC) for South Wales has organised an informal get-together in Cardiff and you are invited.When : Sunday, 13th July, 2025Where: Ronald McDonald House Heath Park Way, Cardiff, CF14 4AYThis event is being organised by Naomi.If […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Local Meet-up: Birmingham
Ronald McDonald House Birmingham St Mary’s Row, Birmingham, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in Birmingham, for a cuppa and chat.Emma Connor, TOFS Local Contact (TLC) for Birmingham has organised an informal get-together and you are invited.What:Coffee MorningWhen:Saturday 30th August, 2025 10.30am – 12.30pmWhere:Day Room, Ronald McDonald House, St Mary’s Row, Birmingham, B4 6NYThis event is […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Great North Run 2025
Newcastle , United KingdomWe have now closed our application process for the 2025 Great North Run but please check out our other marathons and events. Related updates Run for TOFS in the 2025 Great North Run and help to make a difference in the lives of those born unable to swallow. 60,000 determined and dedicated runners make the Great […]
OA/TOF: A father’s perspective
OnlineAre you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF?This event is open to all members but may be particularly useful for dads and caregivers, wishing to meet other parents […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Live Q&A: OA/TOF related respiratory issues for adults
OnlineAre you an adult born with OA/TOF and experiencing respiratory issues, such as chronic cough, aspiration, dysmotility or tracheomalacia? Join us for the upcoming Q&A session with Professor Alyn Morice. Professor Morice is Head of Respiratory Medicine at HYMS, based at the University of Hull. He is also an Honorary Consultant Physician at Hull and East […]
Royal Parks Half Marathon
Hyde Park London, United KingdomRun for TOFS in the 2025 Royal Park Half Marathon and help to make a difference in the lives of those born unable to swallow. Apply soon. Places going fast! SOLD OUT: Please note: This event is now full but you can still sign-up to the waitlist. Entry fee: £50 + £2.50 booking fee.This fee goes towards […]
Myles Clabby Memorial Cup
St. Roch's F.C 713 Royston Rd, Glasgow, United KingdomTOFS Member, Danielle Clabby has organised the 3rd annual Myles Clabby Memorial Cup in October to celebrate the memory of baby Myles.Danielle says, "We want to see as many people there as possible so please spread the word. There will be raffles on the day as well as other fundraising opportunities for TOFS charity."Entry fees:Adults: […]
Parent & Carer virtual meet-up
OnlineAre you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand.This is an informal get […]
Big Splash Swimathon 2025
Various locationsTake part in our Big Splash Swimathon and help support TOFS while staying active! Choose to go it alone or get the whole family involved and set a group target. Pick your distance from our Mini splash right up to 10K or go freestyle and pick your own. Get down to your local pool, lido […]
ERS: Panel discussion on lifelong respiratory care in OA/TOF & CDH
OnlineThe European Respiratory Society (ERS) is holding a webinar which may be of interest to medical professionals with an interest in OA/TOF.The event is co-chaired by Dr Caroline Love, Chair of our Medical Liaison & Research sub-committee, author of the Adult OA/TOF Management Handbook and an adult born with OA/TOF.Event details:29 October, 2025 | Online5pm-6pm CET (4pm […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Parent & Carer virtual meet-up
OnlineAre you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand. This is an informal […]
Run Alton Towers 5k/10k/Half Marathon
Alton Towers Farley Lane, Alton, Staffordshire, United KingdomRun for TOFS at the UK’s biggest Theme Park, Alton Towers, on the 15th &16th November for the Alton Towers 5k, 10k & half marathon events around the park. Starting and finishing within Alton Towers Theme Park this is an event for the entire family. Open to all abilities, you can take on a chip […]
Local Meet-up: Birmingham
Ronald McDonald House Birmingham St Mary’s Row, Birmingham, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in the West Midlands, for a cuppa, chat and some Christmas crafts. Emma Connor, TOFS Local Contact (TLC) for the West Midlands has organised an informal get-together and you are invited!What:Christmas crafts and coffee morningWhen:Saturday 22nd November 2025 10am – 12.30pmWhere:Day Room, […]
Local Meet-up: Merseyside/Wirral
Moreton Presbyterian Church 174a Hoylake Road, Moreton, Wirral, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families from across Merseyside and the Wirral.Alan & Carolyn, TOFS Local Contacts (TLC) for Liverpool, are organising an informal get-together in Moreton and you are invited.When:Saturday, 22nd November, 2025Where:Moreton Presbyterian Church174a Hoylake Rd, Moreton, Wirral, CH46 8TQ This event is free and being […]
Virtual meet-up for adults born with OA/TOF [New Date]
OnlineIMPORTANT UPDATE:This event was originally scheduled to take place on the 4th December.Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Parent & Carer virtual meet-up
OnlineAre you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand. This is an informal […]
London Winter Walk
London London, United KingdomStart New Year on the right foot!A great event to wrap up and walk off the Christmas & New Year celebrations; maybe kick start a new fitness regime - and to fundraise for your favourite charity!There are Full Marathon, Half Marathon & 10km distance options – and an accessible ‘Family Fun 5K’ on the Sunday.All […]
Local Meet-up: Bristol
Ronald McDonald House Bristol Royal Fort Rd, Bristol, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families from across Bristol and surrounding areas.Sarah, TOFS Local Contact (TLC) for the South West of England, is organising an informal get-together in Bristol and you are invited.When:Saturday, 31st January, 2026Where:Ronald McDonald House, Bristol Royal Fort Road, Bristol, BS2 8DH This event is […]
Local Meet up: Essex
Mace Playce - Soft Play Centre Unit 3, Cuton Hall Lane, Chelmsford, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families from across Essex and the South East. Anna, TOFS Local Contact (TLC) for Essex, is organising an informal get-together in Chelmsford and you are invited. When:10am - 12noonSaturday, 31st January, 2026 Where:Mace Playce Soft PlayCuton Hall Ln, Chelmsford CM2 6PBQ This event […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
OA/TOF Awareness Week 2026
Various locationsSave the date From the 23rd February until the 1st March we are asking all members to help us raise awareness of Oesophageal Atresia and Tracheo-Oesophageal Fistula (OA/TOF) .To find out how to get involved, please visit our dedicated Awareness Week page at: https://tofs.org.uk/oa-tof-awareness-week-2026/
OA/TOF: A father’s perspective
OnlineAre you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF?This event is open to all members but may be particularly useful for dads and male caregivers, wishing to meet others […]
Rare Disease Day 2026
Various locations28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. How to get involved Light up for Rare At 7pm on the 28th Feb, show your colours and join the global chain of lights! Play this video at full screen […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
TOFS 2026 Seminar
FeaturedUCL Great Ormond Street Institute of Child Health 30 Guilford Street, London, United KingdomTOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there.The TOFS seminar is […]
Parent & Carer virtual meet-up
OnlineAre you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand.This is an informal get […]
Local Meet-up: Birmingham
Ronald McDonald House Birmingham St Mary’s Row, Birmingham, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in the West Midlands, for a cuppa, chat and some Easter crafts! Emma, TOFS Local Contact (TLC) for the West Midlands has organised an informal get-together and you are invited! What:Children’s Easter crafts When:Saturday 28th March, 202610am – 1pm Where:Day Room, Ronald […]
London Landmarks Half Marathon
London London, United KingdomSOLD OUT: Please note: This event is now full but you can still sign-up to to waitlist. The London Landmarks Half Marathon is a closed road, central London run and is the only half marathon to go through both the City of London and City of Westminster. The event is not your average half marathon! […]
Brighton Marathon 2026
Brighton Brighton, United KingdomThis event has now sold out. Please see our other challenge events if you would like to fundraise for TOFS. Run for TOFS and experience the buzz of the UK’s third-largest marathon! The Brighton Marathon is a unique event which brings out the best of Brighton and celebrates its vibrant communities. What to expect: A […]
Meet-up for adults born with OA/TOF (virtual)
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Manchester Marathon 2026
Manchester Portland Street, United KingdomThis event has now sold out. Please see our other challenge events if you would like to fundraise for TOFS. The adidas Manchester Marathon, the UK's second largest marathon and one of Europe's largest is an iconic event drawing participants from all over the world to the vibrant streets of Greater Manchester. The event prides […]
Local Meet-up: Manchester
Ladybridge Connect Centre, Stockport, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families from across Manchester and surrounding areas.To'neill, TOFS Local Contact (TLC) for Manchester, is organising an informal get-together for children born with OA/TOF and their families.When:25th April 2026, 11:00am-12.30pmWhere: Ladybridge Connect Centre Café, Off Meadway Rd, Cheadle Hulme, Stockport SK8 5NZ (map)This event […]
