In his second presentation at the “Improving Care in OA/TOF” seminar in London, TOFS trustee and board director of EURORDIS, Graham Slater explores the collaborative efforts underway globally to address OA/TOF.
Graham highlights the work of ERNICA, the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies and how patient representatives play a pivotal role to ensuring a holistic approach to care.
The concept of the “patient journey” is also discussed as are the challenges in transitioning patients to adult care.
Watch the video to get a better understanding of the collective efforts being made across the globe to improve outcomes and quality of life for individuals affected by OA/TOF.
Posters featured in this presentation
