Online

Name: Virtual meet-up for adults born with OA/TOF
Start: 2024-09-03T19:00:00+01:00
End: 2024-09-03T20:00:00+01:00
Location: Online

Events at this venue

March 2025
5th March 2025, 3:00pm - 4:00pm GMT
ERNICA: A traumatic Diagnosis – the (early) parent-child interaction in (rare) chronic paediatric diseases

Online
ERNICA – the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies have an upcoming webinar which may be useful for TOFS members. Title: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases When: Wednesday 5 March at 3pm (UK) / 4pm (CET) Book: https://events.teams.microsoft.com/event/08ac7def-4022-4d2e-a5c7-7e08feadf9e4@526638ba-6af3-4b0f-a532-a1a511f4ac80 About the webinar: […]
February 2025
13th February 2025, 8:00pm - 9:00pm GMT
Starting Nursery, Pre-school, and School – Talk with TLCs

Online
Do you have a child born with OA/TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents and share experiences. The session will be held via Zoom and hosted by two of our TOFS Local Contacts (TLCs), Naomi Webborn and Cara Macdonald – both are volunteers and parents […]
6th February 2025, 8:00pm - 9:00pm GMT
Virtual meet-up for adults born with OA/TOF

Online
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
January 2025
29th January 2025, 7:00pm - 8:00pm GMT
Live Q&A: Long term OA/TOF related gastro issues

Online
Are you an adult born with OA/TOF experiencing gastro related issues then please join us for our next live Q&A webinar with Professor Nick Maynard. Professor Maynard is a leading consultant upper GI surgeon based in Oxford, with over twenty-five years of experience in his field. As one of the leading upper GI surgeons in […]
2nd January 2025, 8:00pm - 9:00pm GMT
Virtual meet-up for adults born with OA/TOF

Online
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
December 2024
16th December 2024, 7:00pm - 8:00pm GMT
Virtual meet-up for adults born with OA/TOF

Online
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
5th December 2024, 7:00pm - 8:00pm GMT
Virtual meet-up for adults born with OA/TOF

Online
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
November 2024
7th November 2024, 7:00pm - 8:00pm GMT
Virtual meet-up for adults born with OA/TOF

Online
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
October 2024
24th October 2024, 7:00pm - 8:00pm BST
Live Q&A: Feeding experiences and oral aversion

Online
Please join us for our next live Q&A on issues with feeding experiences and oral aversion for those born with OA/TOF.For this session, we will be joined by Maya Asir.Maya is the lead for the inpatient Speech and Language Therapy service at Evelina London Children’s Hospital. She has been a paediatric Speech and Language Therapist […]
1st October 2024, 8:00pm - 9:00pm BST
Reflux management: Talk with TLCs

Online
Do you have a child born with OA/TOF and have questions about managing reflux?Join our Talk with TLCs online session and meet other parents in a similar situation. It’s a great opportunity to share experiences and get support.The session will be held via Zoom and hosted by two of our TLCs, To'neill and Naomi, both […]
1st October 2024, 6:30pm - 7:30pm BST
Virtual meet-up for adults born with OA/TOF

Online
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
September 2024
3rd September 2024, 7:00pm - 8:00pm BST
Virtual meet-up for adults born with OA/TOF

Online
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]

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Online

Events at this venue

March 2025

ERNICA: A traumatic Diagnosis – the (early) parent-child interaction in (rare) chronic paediatric diseases

February 2025

Starting Nursery, Pre-school, and School – Talk with TLCs

Virtual meet-up for adults born with OA/TOF

January 2025

Live Q&A: Long term OA/TOF related gastro issues

Virtual meet-up for adults born with OA/TOF

December 2024

Virtual meet-up for adults born with OA/TOF

Virtual meet-up for adults born with OA/TOF

November 2024

Virtual meet-up for adults born with OA/TOF

October 2024

Live Q&A: Feeding experiences and oral aversion

Reflux management: Talk with TLCs

Virtual meet-up for adults born with OA/TOF

September 2024

Virtual meet-up for adults born with OA/TOF

Contact

Important Links

Join TOFS

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