In our recent live Q&A, retired Paediatrician and Neonatologist Dr Una MacFadyen, shared her current research in which young adults with a chronic condition offer their first experiences as adult
Share your experiences on how #OA / #TOF has impacted on your everyday life in the #RareBarometer survey: The survey will take around 20 minutes to complete. The survey
ERN eUROGEN has released a new version of their Patient Journey for Anorectal Malformation (ARM). TOFS Trustee and EAT representative, Kate Tyler, is one of the authors of the paper
Speaking at our “Improving Care in OA/TOF” seminar in London, Dhanya Mullassery, Consultant Neonatal and Paediatric Surgeon, talks about how the OA/TOF multidisciplinary team (MDT) at Great Ormond Street Hospital
Join us on Sunday, 21st April, 2024 to cheer on our amazing TOFS London Marathon runners on the official TOFS Cheering Stand. no need to book. Just turn up and
in our recent Q&A Dr Charles Shaw-Smith and Dr Bryn Webb gave an update on their study, OA/TOF: The lost twin hypothesis . This research study looks for specific tags or
Please note, the TOFS office will be closed over the Easter holidays. The office will be closed on Friday the 29th March and reopen on Tuesday the 2nd April, 2024.
In a recording for our Improving Care in OA/TOF seminar, Paediatric Respiratory Consultant, Rebecca Thursfield gives an update on the OCELOT project and the importance of core outcome sets in
Speaking at our “Improving Care in OA/TOF” seminar in London, Nigel Hall, Professor of Paediatric Surgery, University of Southampton, gives an update on the TOAST study. The study aims to
Last week we asked members to join in and help us raise the awareness of OA/TOF and the TOFS charity. It was amazing to see your stories shared across social
