OA/TOF Awareness Week 2025
Various locationsJoin us for our 2025 Awareness Week and help us raise awareness of OA/TOF with health professionals and the wider public.Click here to find out more and get involved.
20 events found.
Rare Disease Day 2025
Various locationsRaising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Keep reading to see how you can get involved. How […]
TOFS Seminar 2025
St Michaels Centre, The Green, Stoke Gifford, Bristol, United KingdomQuick links:Book your ticketFull scheduleSpeaker biographiesJoin us in Bristol to hear from some leading experts and specialists from a variety of healthcare professions, who work with OA/TOF patients. It is […]
ERNICA: A traumatic Diagnosis – the (early) parent-child interaction in (rare) chronic paediatric diseases
OnlineERNICA – the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies have an upcoming webinar which may be useful for TOFS members. Title: A traumatic Diagnosis […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Live Q&A: Managing medications effectively
OnlineDo you have any questions or concerns around the medications you or your child may take? Join Consultant Pharmacist Gastroenterologist Anja St Clair Jones, and Lead Neonatal Pharmacist Christian Chadwick, […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Talk with TLCs: Top tips for travelling with your child born with OA/TOF
OnlineAre you planning on taking your child born with OA/TOF away on holiday? Whether going away in the UK or abroad, as parents, our TLCs Naomi and To’neill understand the […]
TOFS Annual General Meeting
OnlineMembers and Associates are invited to join us for the Annual General Meeting of T.O.F.S.The T.O.F.S. Annual General Meeting will take place on the 24th April, 2025 by Zoom at […]
London Marathon 2025
London London, United KingdomRun the London Marathon for TOFS! Latest news & updates TOFS London Marathon team We have now closed our application process for the 2025 London Marathon due to unprecedented interest, […]
InoEA 25
Renaissance Polat İstanbul Hotel Sahilyolu Cad.No:2 Yesilyurt, Istanbul, TurkeyThe joint meeting of INoEA, PAAFIS and Aerodigestive Society will be held in Istanbul Turkey from April 30th to May 3rd, 2025.The meeting will be hosted by Turkish Association of […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Teddy Toddle 2025
Various locationsThe Teddy Toddle is back and you can double your donation for free!Toddle for the mental health of TOFS!The exciting fundraising event that challenges you to walk, run or even […]
Peak District Ultra Challenge
Bakewell Bakewell Showground, United KingdomTake on the Peak District Ultra Challenge for TOFS!Join Team TOFS to walk, jog, or run in the heart of the beautiful Peak District National Park.Whether you’re up for the 100km, […]
VACTERL Association Support Group Get-Together 2025
The Great Barr Hotel Newton Road Great Barr, BirminghamThis event is promoted on behalf of the VACTERL Association Support Group.The VACTERL Association Support Group aims to connect families and those affected by VACTERL Association, from across the UK. […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with […]
Local Meet-up: Cardiff
Ronald McDonald House Cardiff Heath Park Way, Cardiff, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in South Wales.Naomi Webborn, TOFS Local Contact (TLC) for South Wales has organised an informal get-together in […]
Virtual meet-up for adults born with OA/TOF
OnlineCalling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
Local Meet-up: Birmingham
Ronald McDonald House Birmingham St Mary’s Row, Birmingham, United KingdomDon’t miss your chance to meet up with other OA/TOF parents and families in Birmingham, for a cuppa and chat.Emma Connor, TOFS Local Contact (TLC) for Birmingham has organised an […]
