Live Q&A: Long term OA/TOF related gastro issues
OnlineAre you an adult born with OA/TOF experiencing gastro related issues then please join us for our next live Q&A webinar with Professor Nick Maynard. Professor Maynard is a leading
Are you an adult born with OA/TOF experiencing gastro related issues then please join us for our next live Q&A webinar with Professor Nick Maynard. Professor Maynard is a leading
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults
Do you have a child born with OA/TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents and share experiences. The session will
Join us for our 2025 Awareness Week and help us raise awareness of OA/TOF with health professionals and the wider public.Click here to find out more and get involved.
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Keep reading to see how you can get involved. How
Quick links:Book your ticketFull scheduleSpeaker biographiesJoin us in Bristol to hear from some leading experts and specialists from a variety of healthcare professions, who work with OA/TOF patients. It is
ERNICA – the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies have an upcoming webinar which may be useful for TOFS members. Title: A traumatic Diagnosis
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with
Do you have any questions or concerns around the medications you or your child may take? Join Consultant Pharmacist Gastroenterologist Anja St Clair Jones, and Lead Neonatal Pharmacist Christian Chadwick,
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with
Are you planning on taking your child born with OA/TOF away on holiday? Whether going away in the UK or abroad, as parents, our TLCs Naomi and To’neill understand the
Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S.The T.O.F.S. Annual General Meeting will take place on the 24th April, 2025 by Zoom at
Run the London Marathon for TOFS! Latest news & updates TOFS London Marathon team We have now closed our application process for the 2025 London Marathon due to unprecedented interest,
The joint meeting of INoEA, PAAFIS and Aerodigestive Society will be held in Istanbul Turkey from April 30th to May 3rd, 2025.The meeting will be hosted by Turkish Association of
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with
The Teddy Toddle is back and you can double your donation for free!Toddle for the mental health of TOFS!The exciting fundraising event that challenges you to walk, run or even
Take on the Peak District Ultra Challenge for TOFS!Join Team TOFS to walk, jog, or run in the heart of the beautiful Peak District National Park.Whether you’re up for the 100km,
This event is promoted on behalf of the VACTERL Association Support Group.The VACTERL Association Support Group aims to connect families and those affected by VACTERL Association, from across the UK.
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with
