We are primarily a parent support group, but we respond to developments in medical research into TOF/OA and VACTERL by keeping families and other interested individuals and organisations accurately and impartially informed.

We have strong links with the medical profession. Specialists from areas such as paediatric surgery, dietetics and genetics speak at our annual conference.

We also provide funds to support scientific research into the causes, effects and implications of TOF/OA and VACTERL. In May 2005, we awarded Dr Shaw-Smith (Honorary Consultant at Addenbrookes Hospital, Cambridge) with £10,000 to advance research into TOF/OA.

TOF parents and TOF adults have a wealth of information which is often vital to those undertaking scientific research into the TOF condition. If a researcher asks for our assistance, and if it is appropriate we may invite you to take part in research projects by sharing your knowledge.

Current Research Projects

Columbia University Care Study

Columbia University Medical Centre in New York are looking for participants for a new research study that will examine the genetic causes of TOF/OA.

Completed Research Projects

GOA Research Project

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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